Dukungan Keluarga dalam Merawat Anak dengan Talasemia: a Narrative Review

Nurul Azmi Nabilah, Maria Komariah, Henny Suzana Mediani

Sari


ABSTRACT

 

Thalassemia is a significant global health problem, with many challenges in the treatment process. Parents, especially mothers, generally act as the main care givers for their children's care, so it is not only the child who feels the impact of the disease, but also the parents. To explore the support that mothers need in accompanying their child's care process. This study used a narrative review design that followed PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) procedures for article selection. Inclusion criteria included articles that addressed maternal support for child care, were published within the last five years, and were in English. Data were analyzed by identifying key themes related to maternal support. The results of the article analysis showed that there were 6 articles that discussed maternal support in assisting child care. The support obtained included informational, emotional, spiritual, financial, social, and professional support. The need for a holistic approach to improve the role of nurses in intervening in the form of collaborative interventions with other health workers.

 

Keywords: Children, Family, Support, Thalassemia

 

 

ABSTRAK

 

Talasemia merupakan masalah kesehatan global yang signifikan, dengan banyak tantangan proses perawatannya. Orang tua, khususnya ibu umumnya berperan sebagai care giver utama bagi perawatan anak sehingga bukan hanya anak yang merasakan dampak dari penyakit, orang tua pun ikut mengalami dampak dari penyakit yang diderita oleh anak. Untuk mengeksplorasi dukungan yang dibutuhkan keluarga dalam mendampingi proses perawatan anak. Penelitian ini menggunakan desain narrative review yang mengikuti prosedur PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) untuk seleksi artikel. Kriteria inklusi mencakup artikel yang membahas dukungan keluarga dalam mendampingi perawatan anak, dipublikasikan dalam lima tahun terakhir, dan menggunakan bahasa inggris. Analisis data dilakukan dengan mengidentifikasi tema-tema utama terkait dukungan keluarga. Hasil dari analisis artikel menunjukkan terdapat 6 artikel yang membahas tentang dukungan keluarga dalam mendampingi perawatan anak. Dukungan yang diperoleh diantaranya dukungan informasi, emosional, spiritual, finansial, sosial, dan profesional. Perlunya pendekatan holistik untuk meningkatkan peran perawat dalam melakukan intervensi berupa intervensi kolaboratif dengan tenaga kesehatan lainnya.

 

Kata Kunci: Anak, Dukungan, Keluarga, Talasemia


Teks Lengkap:

Download Artikel

Referensi


Andriyani, Y., Rachmawati, I., & Marzuki, A. (2022). Strategi coping keluarga dalam merawat anak dengan talasemia mayor usia 6-12 tahun di Bandung, Indonesia. Jurnal Kesehatan Masyarakat, 14(2), 110-119.

Atiye Karakul, B., Sevim, E., & Yılmaz, G. (2022). A qualitative study exploring the experiences of parents caring for their children with thalassemia major in Turkey. Journal of Pediatric Nursing, 45(1), 89-97.

Barua, T., Das, A. K., Sultana, R., Das, D., & Arju, M. A. C. (2020). Socio-demographic Profile of Patients Admitted in Thalassemia Care Center of Chattogram Maa Shishu-O-General Hospital. Chattagram Maa-O-Shishu Hospital Medical College Journal, 19(1), 33–37. https://doi.org/10.3329/cmoshmcj.v19i1.48800

Cohen, A., Galanello, R., & Piga, A. (2019). Management of thalassemia. Springer.

Fathi, M., & Chahardouli, S. (2020). The role of family support in caregiving for children with chronic diseases. International Journal of Pediatrics, 8(5), 114-121.

Goh, L. P., Chong, E. T., & Lee, P.-C. (2020). Prevalence of Alpha(α)-Thalassemia in Southeast Asia (2010–2020): A Meta-Analysis Involving 83,674 Subjects. In International Journal of Environmental Research and Public Health (Vol. 17, Issue 20). https://doi.org/10.3390/ijerph17207354

Haghdoost, A., & Rashidian, A. (2019). The psychological burden of parents caring for children with thalassemia major. Iranian Journal of Pediatrics, 29(4), e11845.

Hassani, M., & Khosravi, A. (2020). Educational interventions for parents of children with chronic diseases: A review of effectiveness. International Journal of Nursing, 57(1), 71-80.

Heidari, M., & Ahmadi, F. (2020). Psychological and social consequences for parents of children with thalassemia. Journal of Pediatric Hematology/Oncology, 42(1), 45-53.

Hussain, A., Qureshi, A., & Iqbal, M. (2021). Experiences and challenges faced by parents of thalassemia patients in Lahore, Pakistan. Asian Journal of Health, 29(3), 102-109.

Khoo, S. P., Chai, M. Y., & Tan, S. K. (2020). Social support and its impact on the well-being of caregivers of children with chronic illness. Journal of Pediatric Nursing, 52, 98-104.

Kreidieh, F., Fares, A., & Khoury, R. (2017). Parental knowledge and emotional responses to the diagnosis of thalassemia: Impact on children with thalassemia major. Journal of Pediatric Hematology/Oncology, 39(2), 123-129.

Kurniawan, M. A., & Utami, S. (2019). Dukungan keluarga dalam merawat anak dengan talasemia mayor. Jurnal Keperawatan Indonesia, 22(2), 115-123.

Mahfouz, A. S., & Al-Shehri, A. (2018). Psychosocial support for caregivers of children with chronic illnesses: A review. International Journal of Nursing Practice, 24(4), 39-46.

Majedeh Nabavian, M., Cheraghi, F., Shamsaei, F., Tapak, L., & Tamadoni, A. (2022). Exploring the psychosocial challenges of mothers caring for children with thalassemia in Iran: A qualitative study. Journal of Nursing and Health Sciences, 8(2), 125-132.

Mat, M. A. C., Yaacob, L. H., & Zakaria, R. (2020). Parental knowledge on thalassaemia and factors associated with refusal to screen their children. Malaysian Journal of Medical Sciences, 27(1), 124–133. https://doi.org/10.21315/mjms2020.27.1.13

Nabavian, M., Cheraghi, F., Shamsaei, F., Tapak, L., & Tamaddoni, A. (2022). The psychosocial challenges of mothers of children with thalassemia: A qualitative study. Journal of Education and Health Promotion, 11, 37. https://doi.org/10.4103/jehp.jehp_163_21

Nabavian, M., Cheraghi, F., Shamsaei, F., Tapak, L., & Tamadoni, A. (2021). The experiences of mothers caring for children with thalassemia major in Iran: A phenomenological approach. Pediatric Nursing, 35(4), 231-239.

Rachmat, H. I., & Subekti, R. (2020). Kesehatan Ibu dan Anak. Erlangga.

Rachmat, H. I., & Susanti, D. (2021). Dukungan keluarga dalam perawatan anak dengan talasemia mayor: Sebuah tinjauan literatur. Jurnal Keperawatan Anak, 5(1), 56-63.

Rashid, M. A. ul H., & Abbasi, S.-U.-R. S. (2020). Theorizing Beta Thalassemia Major: an Overview of Health Sociology. International and Multidisciplinary Journal of Social Sciences, 9(1 SE-Articles), 51–75. https://doi.org/10.17583/rimcis.2020.5113

Salim, S., & Murtaza, S. (2018). The impact of healthcare education on parental coping with chronic childhood diseases. Pediatric Health Journal, 14(2), 122-130.

Seghieri, G., & Malafronte, R. (2016). Psychological support for mothers of children with chronic illnesses. Pediatric Hematology Oncology Journal, 33(3), 198-205.

Yayasan Thalasemia Indonesia. (2018). Prevalensi Thalasemia di Indonesia.

Zhang, Y., & Liu, J. (2019). Psychological interventions for caregivers of children with chronic conditions: A review of randomized controlled trials. BMC Psychology, 7(1), 19-29.




DOI: https://doi.org/10.33024/mahesa.v5i9.19290

Refbacks

  • Saat ini tidak ada refbacks.


Publisher: Universitas Malahayati Lampung

Creative Commons License
Semua artikel dapat digunakan dibawah lisensi Creative Commons Attribution-ShareAlike 4.0 International License


kostenlose besucherzähler